Thursday, January 27, 2011
One Day Work Up
Well, the one day work up is scheduled -- for February 11! I can't believe how soon it is. I got the schedule yesterday and it looks like hubby and I are going to be poked and prodded from head to toe from about 7:30 in the morning until 3:00 that afternoon. We'll fly out to Denver on Thursday, do our testing on Friday and then we'll get to spend our Saturday enjoying the sights of Denver. There's a lot to get done between now and then. I have to book a flight, hotel room, and rental car. I have to figure out how to finance all of this - ugh! If anyone has Southwest frequent flyer miles that they don't plan on using send them my way! (just joking)
Tuesday, January 25, 2011
My CCRM phone consultation
So my phone consultation was last night. It went pretty well, I guess. Dr. Surrey didn't tell me much of anything that I wasn't expecting, or didn't already know. He threw out some idea of tests that I need to be sure to do, to make sure the hubby and I aren't carriers of certain disorders. He said that women under the age of 40 with a high FSH (that's me!) tend to be carriers of the fragil x gene - which causes mental Retardation. He also wants to be sure that hubby and I aren't carriers of cystic fibrosis. He also told me some supplements I could take to improve egg quality, which I will start taking IMMEDIATELY!
The main thing he told me was that he was concerned that at my last egg retrieval I had 5 follicles but only got one mature egg from them. He said that I may not have responded to the trigger shot and that CCRM fixes that by doing blood work the day after the trigger to make sure you've responded to it, and if you haven't they give you supplementary injections to make you respond to it. Or it could just mean that my egg supply is so low that there were never any eggs. If that's the case there's not much they can do. Let's hope it's the first option! I mentioned that I felt like my RE may have jumped the gun a little bit - that he was so excited that I was actually growing some follicles that he may have triggered me too early, and Dr. Surrey said that was very possible - the he would normally like to see the follicles be larger than mine were at egg retrieval.
Anyway, he wants me to go out and do the 1 day work up with them. He wants me to go through all of the testing for IVF plus all of the testing for using donor eggs. That way if we find out that we need to go the donor egg route, we are already set to do that - no more wasting time! I'll do lots of blood work, ultrasounds to look at my antral follicle count which will give me a good idea of how many eggs I actually do have left, and an extensive look at my uterus to make sure there aren't any problems there. Hubby and I will also have a session with the psychologist to discuss our thoughts on donor eggs - which will probably be very beneficial. In fact, I think that's the part I'm most looking forward to!
So I'll call today and set all that up, I guess. And then it's a matter of waiting for my next cycle to begin and figuring out when I can go out there. He didn't seem very optimistic that my chances are great with my eggs, but I appreciate his honesty nonetheless. I guess we'll just have to wait and see what all of the test results from the one day workup tell us! Colorado, here we come!
The main thing he told me was that he was concerned that at my last egg retrieval I had 5 follicles but only got one mature egg from them. He said that I may not have responded to the trigger shot and that CCRM fixes that by doing blood work the day after the trigger to make sure you've responded to it, and if you haven't they give you supplementary injections to make you respond to it. Or it could just mean that my egg supply is so low that there were never any eggs. If that's the case there's not much they can do. Let's hope it's the first option! I mentioned that I felt like my RE may have jumped the gun a little bit - that he was so excited that I was actually growing some follicles that he may have triggered me too early, and Dr. Surrey said that was very possible - the he would normally like to see the follicles be larger than mine were at egg retrieval.
Anyway, he wants me to go out and do the 1 day work up with them. He wants me to go through all of the testing for IVF plus all of the testing for using donor eggs. That way if we find out that we need to go the donor egg route, we are already set to do that - no more wasting time! I'll do lots of blood work, ultrasounds to look at my antral follicle count which will give me a good idea of how many eggs I actually do have left, and an extensive look at my uterus to make sure there aren't any problems there. Hubby and I will also have a session with the psychologist to discuss our thoughts on donor eggs - which will probably be very beneficial. In fact, I think that's the part I'm most looking forward to!
So I'll call today and set all that up, I guess. And then it's a matter of waiting for my next cycle to begin and figuring out when I can go out there. He didn't seem very optimistic that my chances are great with my eggs, but I appreciate his honesty nonetheless. I guess we'll just have to wait and see what all of the test results from the one day workup tell us! Colorado, here we come!
Friday, January 21, 2011
A preview
This is actually a letter that I wrote to my support group. Some of my family and friends who have been with me throughout this journey. It was written in December after my most recent IVF cycle. I figured it would be a good introduction for the blog.
Dear Family and Friends,
This is for all of you who have been my support group for the past several months/years. Many of you unknowingly volunteered for this position by giving me unconditional love, prayers, and support. Most of you fell into the position (whether you wanted to or not) by just being around me every day and not being able to escape it; and some of you had no choice because you’re a relative! Regardless of the reason, I want to thank you, from the bottom of my heart, for being there for Ryan and me. I wish I had the time (or really the emotional will-power) to write each and every one of you a personal, handwritten note – but I just can’t put myself through that (I am certain you all understand!) You have all, in your own ways, been a true blessing to me. I cannot begin to tell you how much it means to me to have your prayers, your words of encouragement, your shoulders to cry on, your ears to listen to my screaming frustration, and your gentle hearts and faith to help me carry on.
This is a letter I started writing for myself, just to get all of my ideas out of my jumbled mind. But as I was writing it, I felt that I needed to share it with all of you. After all, you have been through this entire journey with me, and I felt as if you deserve to know what I’m thinking – I don’t always express myself too well with spoken words, and sometimes I think I come across as more of a doer than a feeler (if that makes any sense.) Basically, I just wanted you to know, because you deserve to know, how I am feeling. Anyway, here it is...and please excuse the length!
This has been the most difficult 2 ½ years of my life. Ryan and I have been through the heartbreak of trying our hardest to have a baby “the old fashioned way,” only to be disappointed each month for a year and a half. I have charted basil body temperatures, been told by doctors to just be patient -“sometimes it takes people longer”, “your temperature charts are textbook perfect” they said. Then, after referring myself to a Reproductive Endocrinologist 10 months ago, it has just been a whirlwind of emotions. We have found out I can't have children naturally due to blocked tubes, I've been through 2 IVF cycles that got canceled due to poor response to the medications (after doing all of the injections, I might add) and then, after more hormones and blood tests, found out I also have the egg supply of a 40 year old. Through all of this I have watched all of my married friends get pregnant without really trying – “just to add salt to the wound” as they say. (please don’t take offense to that for those of you who are so very blessed with babies!)
The past month has been the most difficult - Ryan and I have been to 2 funerals of close family members, I have stuck myself with a needle twice a day, swallowed a countless supply of hormones in pill form, been through a painful medical procedure, to then start having shots given to me by Ryan or Mom with a 2 inch long needle every day (talk about the feeling of helplessness)- with thick enough medicine to give me welts and bruises on my back. I have gained close to 10 pounds due to the countless number of hormones that I've been subjecting my body to, my face looks like a 16 year old’s, and my ovaries still feel like they have golf balls inside them. My entire body aches, the bruise on my left arm from all of the blood work makes me look like a heroine addict, and my eyes are constantly blood shot from all of the crying. I have gone to talk to a nun who supposedly performs miracles, especially dealing with infertility (one of the most terrifying experiences of my life, by the way) and have spent countless hours on the Internet on message boards of people who have done IVF, Googling my diagnosis (yeah I know - terrible idea) and researching clinics across the country who may be able to better help me. I have gotten my hopes up one day: planning a nursery, figuring out important pregnancy dates (even the week that I would get the glucose test done - I know I'm weird), to then bawling my eyes out because I didn't have any "symptoms." And don't even get my started on the money we've spent on all of this - the medical bills that I will be paying off of my credit card for the rest of my life (or so it seems!) and the miles that I have put on my poor car driving back and forth to our RE's office which is 2 1/2 hours away. I spent the majority of my Thanksgiving break on bed rest, spending countless hours looking at the picture of our little 4 cell embryo, and praying for a miracle. Regardless of the praying, regardless of what "Papa" told the nun, regardless of doing everything right, I found out today that I won't be having a baby in 9 months - my arms will be empty.
Still, after all of this, I'm ready to start again. Whether it's with my own eggs, through donor eggs, or through adoption - I will be a mother and Ryan will be a dad. We don’t know why God has challenged us with this, and we are both pretty angry with Him right now. However, we also know that He is all we have left. He is the only being that we can truly depend on right now. I’m not sure I have ever needed God more. As angry and confused as I am about why He has chosen me for this challenge, and as much as I feel like He owes us a miracle, I know that it is ultimately up to Him. No matter how much I beg and scream and throw my fist, He will answer my prayers when He is ready. Finding the patience is the most difficult, especially when I know that every month we don't do IVF, is every month that I'm losing eggs from my diminishing supply - they're just going to waste.
But I can say – when it does finally happen for us, I won't ever take it for granted. I will cherish every moment of my pregnancy (oh how I pray for morning sickness and back pain), every moment of delivery (although I will be getting an epidural, I don't want to remember it that badly!), and every sleepless night with my newborn. I will sing to the heavens when my baby starts teething, crawling, and walking. I will delight in my two year old's tantrums, potty training, and moodiness. I will be grateful for every lost tooth (and I HATE dealing with teeth!), and every skinned knee (oh yeah, and I don’t do blood very well either!) I will praise God for a 16 year old that hates me, and I will thank Him for the countless debt from his/her college tuition. I will watch my children get married and bless me with grandchildren and I will tell them all how much I love them and am blessed by them every single day. I will cherish the bad moments along with the good. I know there will be moments when I will be tired and feel like complaining, but I won't for a second miss the days when I wasn't a mother.
I’m not really sure what our next steps are. We know we will keep trying. We know we will never give up. We will spend every last penny we have, and we will travel whatever distance it takes. Because I know, from the deepest place in my soul, that I am meant to be a mother.
I love you all so very much. Please continue to keep us in your prayers. And please know that I thank God for all of you every night. I have never felt so loved - and that is the blessing that I can take from all of this. It has made me closer to my husband, I have discovered who my true friends are, and I have never appreciated my family more. I will forever be grateful for that.
Dear Family and Friends,
This is for all of you who have been my support group for the past several months/years. Many of you unknowingly volunteered for this position by giving me unconditional love, prayers, and support. Most of you fell into the position (whether you wanted to or not) by just being around me every day and not being able to escape it; and some of you had no choice because you’re a relative! Regardless of the reason, I want to thank you, from the bottom of my heart, for being there for Ryan and me. I wish I had the time (or really the emotional will-power) to write each and every one of you a personal, handwritten note – but I just can’t put myself through that (I am certain you all understand!) You have all, in your own ways, been a true blessing to me. I cannot begin to tell you how much it means to me to have your prayers, your words of encouragement, your shoulders to cry on, your ears to listen to my screaming frustration, and your gentle hearts and faith to help me carry on.
This is a letter I started writing for myself, just to get all of my ideas out of my jumbled mind. But as I was writing it, I felt that I needed to share it with all of you. After all, you have been through this entire journey with me, and I felt as if you deserve to know what I’m thinking – I don’t always express myself too well with spoken words, and sometimes I think I come across as more of a doer than a feeler (if that makes any sense.) Basically, I just wanted you to know, because you deserve to know, how I am feeling. Anyway, here it is...and please excuse the length!
This has been the most difficult 2 ½ years of my life. Ryan and I have been through the heartbreak of trying our hardest to have a baby “the old fashioned way,” only to be disappointed each month for a year and a half. I have charted basil body temperatures, been told by doctors to just be patient -“sometimes it takes people longer”, “your temperature charts are textbook perfect” they said. Then, after referring myself to a Reproductive Endocrinologist 10 months ago, it has just been a whirlwind of emotions. We have found out I can't have children naturally due to blocked tubes, I've been through 2 IVF cycles that got canceled due to poor response to the medications (after doing all of the injections, I might add) and then, after more hormones and blood tests, found out I also have the egg supply of a 40 year old. Through all of this I have watched all of my married friends get pregnant without really trying – “just to add salt to the wound” as they say. (please don’t take offense to that for those of you who are so very blessed with babies!)
The past month has been the most difficult - Ryan and I have been to 2 funerals of close family members, I have stuck myself with a needle twice a day, swallowed a countless supply of hormones in pill form, been through a painful medical procedure, to then start having shots given to me by Ryan or Mom with a 2 inch long needle every day (talk about the feeling of helplessness)- with thick enough medicine to give me welts and bruises on my back. I have gained close to 10 pounds due to the countless number of hormones that I've been subjecting my body to, my face looks like a 16 year old’s, and my ovaries still feel like they have golf balls inside them. My entire body aches, the bruise on my left arm from all of the blood work makes me look like a heroine addict, and my eyes are constantly blood shot from all of the crying. I have gone to talk to a nun who supposedly performs miracles, especially dealing with infertility (one of the most terrifying experiences of my life, by the way) and have spent countless hours on the Internet on message boards of people who have done IVF, Googling my diagnosis (yeah I know - terrible idea) and researching clinics across the country who may be able to better help me. I have gotten my hopes up one day: planning a nursery, figuring out important pregnancy dates (even the week that I would get the glucose test done - I know I'm weird), to then bawling my eyes out because I didn't have any "symptoms." And don't even get my started on the money we've spent on all of this - the medical bills that I will be paying off of my credit card for the rest of my life (or so it seems!) and the miles that I have put on my poor car driving back and forth to our RE's office which is 2 1/2 hours away. I spent the majority of my Thanksgiving break on bed rest, spending countless hours looking at the picture of our little 4 cell embryo, and praying for a miracle. Regardless of the praying, regardless of what "Papa" told the nun, regardless of doing everything right, I found out today that I won't be having a baby in 9 months - my arms will be empty.
Still, after all of this, I'm ready to start again. Whether it's with my own eggs, through donor eggs, or through adoption - I will be a mother and Ryan will be a dad. We don’t know why God has challenged us with this, and we are both pretty angry with Him right now. However, we also know that He is all we have left. He is the only being that we can truly depend on right now. I’m not sure I have ever needed God more. As angry and confused as I am about why He has chosen me for this challenge, and as much as I feel like He owes us a miracle, I know that it is ultimately up to Him. No matter how much I beg and scream and throw my fist, He will answer my prayers when He is ready. Finding the patience is the most difficult, especially when I know that every month we don't do IVF, is every month that I'm losing eggs from my diminishing supply - they're just going to waste.
But I can say – when it does finally happen for us, I won't ever take it for granted. I will cherish every moment of my pregnancy (oh how I pray for morning sickness and back pain), every moment of delivery (although I will be getting an epidural, I don't want to remember it that badly!), and every sleepless night with my newborn. I will sing to the heavens when my baby starts teething, crawling, and walking. I will delight in my two year old's tantrums, potty training, and moodiness. I will be grateful for every lost tooth (and I HATE dealing with teeth!), and every skinned knee (oh yeah, and I don’t do blood very well either!) I will praise God for a 16 year old that hates me, and I will thank Him for the countless debt from his/her college tuition. I will watch my children get married and bless me with grandchildren and I will tell them all how much I love them and am blessed by them every single day. I will cherish the bad moments along with the good. I know there will be moments when I will be tired and feel like complaining, but I won't for a second miss the days when I wasn't a mother.
I’m not really sure what our next steps are. We know we will keep trying. We know we will never give up. We will spend every last penny we have, and we will travel whatever distance it takes. Because I know, from the deepest place in my soul, that I am meant to be a mother.
I love you all so very much. Please continue to keep us in your prayers. And please know that I thank God for all of you every night. I have never felt so loved - and that is the blessing that I can take from all of this. It has made me closer to my husband, I have discovered who my true friends are, and I have never appreciated my family more. I will forever be grateful for that.
Anxiously Waiting
We have a phone consultation at CCRM (Colorado Center of Reproductive Medicine) who are supposed to be number one in the country. The consultation is Monday and I just got a phone call from them to let me know that my appointment time has been postponed an hour. I know it's just an hour and it's not that big of a deal, but I must admit that that is going to be one extra hour that I am sitting by the phone and stressing out! I am so ready for that conversation I can hardly stand it! They will either tell me that there is a chance they could help me and I need to go out there for a one day work up so they can get more information, or worst case scenario, they'll tell me that there's nothing they can do other than help me with donor eggs. I really think they'll try to help me. I'm pretty sure they see people like me all the time.
I just wish I could see into the future. The waiting is the worst!
I just wish I could see into the future. The waiting is the worst!
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